Welcome!
On this site I tell about my life as queer with a chronic illness. As a passionate storyteller, I exchange information with striking examples and personal experiences. Hopefully you are able to better empathise with my situation. And with that of many others...
Living with ME/CFS is… Not realising you have the flu.
Submitted by Jochem on Fri 30/07/2021 07:45Since I have ME/CFS, I haven't had flu! No. Again: since I have ME/CFS, I don't notice when I have flu. Because to me the symptoms of the flu are so much like the symptoms of ME/CFS that I can't tell them apart. That is why it often takes a week before I realise I am not having a bad week, but I have flu.
Chronically ill and (no) sex
Submitted by Jochem on Fri 02/07/2021 00:00Living with ME/CFS is… Taking the flu for 3 to 6 weeks as normal.
Submitted by Jochem on Fri 25/06/2021 07:15Sauna policy discriminates against transgender people
Submitted by Jochem on Fri 18/06/2021 07:54A while ago I heard about a sauna where they apparently don't know what to do with transgender people. In this sauna, the policy applies that “women” may wear a bikini, panties or top and “men” may only wear a towel. In this sauna they base gender on the legal sex of the customer. So, the letter in the passport. Inquiry showed that binders are not allowed in this sauna.
Speech confusion
Submitted by Jochem on Fri 04/06/2021 07:26Thinking in Lego, building in Duplo
Submitted by Jochem on Fri 28/05/2021 00:00Living with ME/CFS is… Getting lost in the fridge.
Submitted by Jochem on Sat 22/05/2021 11:04One day I wake up. I'm looking in the fridge, the open door in my hand. I hear someone asking: "What am I doing here?" For a moment I am surprised, because I am sure I didn't say anything. Yet it is my voice. I look around and I see a plate with two sandwiches on the counter. I realise I'm making lunch.