Very severe ME: Out of sight, into the heartSubmitted by Jochem on Mon 26/09/2022 08:14
The unique added value of peer contactSubmitted by Jochem on Mon 27/06/2022 08:16
Pagan with a disabilitySubmitted by Jochem on Mon 06/06/2022 08:13
Chronically ill and (no) sexSubmitted by Jochem on Sat 30/04/2022 08:59
Wanted: rehabilitation center with offerSubmitted by Jochem on Sat 09/10/2021 09:50
A while ago I saw a petition on the website of HandicapNL calling for rehabilitation programs to be expanded with the transition from rehabilitation center to life at home. A justified demand, because that transition is very big. Too big. So I wholeheartedly support this petition! But it also made me jealous, because when I got sick, the reaction was: “You have to learn to live with it”. And I was outside again.
Chronically ill and (no) sexSubmitted by Jochem on Fri 02/07/2021 00:00
Living with ME/CFS is… Taking the flu for 3 to 6 weeks as normal.Submitted by Jochem on Fri 25/06/2021 07:15
Speech confusionSubmitted by Jochem on Fri 04/06/2021 07:26
Living with ME/CFS is… Getting lost in the fridge.Submitted by Jochem on Sat 22/05/2021 11:04
One day I wake up. I'm looking in the fridge, the open door in my hand. I hear someone asking: "What am I doing here?" For a moment I am surprised, because I am sure I didn't say anything. Yet it is my voice. I look around and I see a plate with two sandwiches on the counter. I realise I'm making lunch.